Conversations About Advance Care Planning

In this episode it is my pleasure to talk with Thomas Whitelaw, National Lead for Person Centred Voices and know by many as Tommy on Tour. We explore What Matters to You from a carers perspective and Tommy shares how the experience of caring for his Mum proved the catalyst for the incredible work he does today. You can access the resource Tommy refers to in our conversation https://linktr.ee/personcentred If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

This episode features a conversation and great catch up with Dani Ayre and the Waiting Room revolution Team. We discuss how the Advance Care Planning Conference developed, and the joy of working together for the Hope for the Best Plan for the Rest UK road tour. We also explore the next steps in bringing the principles of the Waiting Room Revolution to the UK. You can access the podcast in full at:  https://www.waitingroomrevolution.com/podcast/episode/2a73fb01/s9-episode-95-clare-fuller-and-dani-ayre    The Waiting Room Revolution podcast theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit the Waiting Room Revolution website to learn more about their work, check out the Map Project, or to see resources. https://www.waitingroomrevolution.com/    If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations.   If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

This episode expands on a discussion I had with Nick Ferrari from LBC around assisted dying, specifically in response to Wes Streeting statement that he is “not sure that as a country we have the right end-of-life care available to enable a real choice on assisted dying.” It’s my first solo episode and I explore  the reality of end-of life-care provision,  debunk some of the emotive discussion around assisted dying and share the choices we all have now.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to speak with Beverley Bulmer, a Funeral Celebrant and founder of Leaving Gracefully, End of Life Planning. We explore the difference it can make when plans are in place, when and how to take the first steps and what Leaving Gracefully can offer.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

Sam Royston is Director of Policy and Research of Marie Curie, the UK’s end of life charity. He was previously Policy Director at The Children's Society, and is a former chair of the End Child Poverty coalition. He is also author of the book "Broken Benefits: What's gone wrong with welfare reform". In this episode we discuss the Marie Curie 2022 Dying in Poverty report and what has changed in the two years since it’s been published. We also explore the Better end of life care report, published in September 2024, and the duel need to raise awareness and take action.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Karen Turner. Karen is a physiotherapist with a clinical background in oncology and palliative care. Karen is now Head of Improvement at the Royal Free Hospital where she  Champions the benefit and impact of asking What Matters to You. We explore how Karen became interested in the  What Matters to You movement and the difference it has made to her patients, staff and close friends too.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode I talk with Dr Joseph Hawkins, best known as Joe to his colleagues and patients where he works at St Peter’s hospital in Chertsey. Joe is a palliative medicine consultant and has worked in community, hospital and hospice settings as both registrar and consultant.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

I am thrilled that Dani will be joining me as a regular guest on the podcast. We’re going to be reflecting on updates, resources and our experiences around Advance Care Planning. In this episode we explore recent research into radiological tests in the last six months of life. We also discuss the Dr Kathryn Mannix TED Talk, Heart Stopping moments and how this could be used in your practice If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Penny Shepherd. Penny is the coordinator and co-founder of Ageing Without Children East Kent (AWOC East Kent), a group run by and for people who are ageing without the support of adult children, either because they never had children or for other reasons.  We explore the Advance Care Planning challenges and healthcare assumptions faced by people who are ageing without children and the campaigning work of AWOC. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin  is very importantly  the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Martin’s revelations and how Advance Care Planning has become such a normal and comfortable part of his life planning.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer.    We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment means and the changing nature of hope.    If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that storytelling has on Advance Care Planning.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grateful to Tara for having such an important conversation so publicly.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure with Radha Sundaram an NHS consultant in intensive for the last 16 years in Scotland. Radha is an advocate for organ donation and improving awareness amongst our diverse society. She has had a long-standing interest in end of life care and has been responsible for the guidelines in NHS Greater Glasgow and Clyde. Radha also does pro bono work for a charity called Pallium in India which was described in the Lancet as model for end of life care and for the Mohan Foundation which is India’s largest organ donation advocacy organisation We talk about Radha’s work in supporting organ donation in a diverse and multi ethnic society and cultural perspectives that can translate into organ donation. I learn about PALLIUM and the Mohan Foundation and current work in India around Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Evie King, author of the incredible book Ashes to Admin. I learn from Evie what it means to have a Section 46 council funeral and, most importantly, that nobody is nobody. Evie describes the care and detail that goes into a council funeral dispelling myths about what it means to die alone and sharing what the role has taught her about planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In this episode it is my pleasure to talk with Dr Lucy Pain, who is this year’s Dying Matters Awareness week expert. I have the chance to thank Lucy publicly for recommending Conversations About Advance Care Planning as part of the recommended books (and more) for Dying Matters Awareness Week. We explore the importance of week, why language matters and what resource is available through Hospice UK. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the final episode of our series of podcasts,  we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years, months and days of life.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource section for this podcast.  If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY

In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions  to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost the ability to speak for yourself.   If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY